Tuesday, April 25, 2017

The Ronald McDonald House of Winston-Salem



In 2009, four days after Landon’s birth and surgeries, we were exhausted. We refused to venture far from the hospital for fear something would happen to Landon. We took turns sitting by Landon’s bedside and sleeping in the Pediatric Intensive Care waiting room, where we had staked out our corner as a campsite. We “freshened up”, and brushed our teeth in the nearby bathrooms. Our meals came from the hospital cafeteria.

A social worker from the hospital approached us and told us the Ronald McDonald House had granted us a room. The house was a couple blocks from the hospital. We could now take turns going to the house to sleep, shower, and eat a meal. The Ronald McDonald house became a port in the storm for the next couple weeks.
(Shelly in the kitchen at the Ronald McDonald House)

The house was clean, secure, and had a private bath for each room. There was plenty of food stocked in the kitchen. Every few days volunteers would come to bring prepared foods or to cook a meal for those staying at the house.

many organizations have blessed and helped us during this journey with Landon. The Ronald McDonald House in Winston-Salem, North Carolina was one of the first. Families experiencing one of the most difficult times imaginable can find help at the Ronald McDonald House. If you find it in your heart to somehow help and support the Ronald McDonald House, please do so. Here is a link to their web site: https://www.rmhws.org/house/about-the-house/

Saturday, April 22, 2017

Do You Believe in Divine Intervention?


Do you believe in Divine Intervention?


Do you believe in Divine intervention? Do you believe that God will step in and orchestrate a series of events, in response to a prayer or request? Did God plan this series of events from the start? Or, do you believe our lives are just like a feather in the wind, blown around by a series of coincidence. Or, like Forrest Gump said, is it, “a little of both”.

When Landon was born, I witnessed something that changed the way I think about our lives and the existence of God. Even today, eight years later, I can only describe what happened as Divine intervention.

It was like watching a car wreck in slow motion. A car, with little baby Landon inside, was speeding towards a brick wall. The outcome would be certain death. Suddenly, the hand of God reached down, with split second timing, and turned the car in a different direction, sparing Landon’s life.

I’m not going to go into detail here about what happened. I will say that I have been working on a book about Landon, his transplant, and the journey all of us took that got him to a transplant. I hope to have it ready to publish by the end of this year. Please sign up to "follow" Landon's blog. It will help us to have as many followers as we can get, when it comes time to publish the book.

I do want to continue reposting the blog entries from the time of Landon’s birth. I made this post after we found out Landon was a candidate for a transplant:


Thursday, April 23, 2009

The operation went well. There was some inflammation but no sign of infection. They have removed the small intestine and attached the large intestine to the duodenum. They have established a catheter in his right thigh and he has a temporary tube in his stomach. The surgeon said that the catheter in his leg will probably be used to feed him for several years. Now we will be watching for any signs of infection or other complications. The surgeon now seems to be very optimistic.

We discussed what to expect in the short term and long term. In the short term we need to get through the next four days with no complications. After that we will probably be here for about four weeks. We will be learning about how to care for Landon, when he gets home. In the longer term, it is common for the liver to be damaged by the formula used for intravenous feeding. The doctors in Boston have modified the formula and it is not causing as much damage. They have discussed with the doctors here how to prepare the formula.

After Landon gets home there will be constant doctor visits and constant care. It may be several years before the need for a transplant.

Thursday, April 20, 2017

Today is Landon's Birthday - Repost of First Blog Entry


Today is Landon’s 8th Birthday. On this day, in 2009, the day began full of joy and laughter with Landon’s arrival. Within hours we began an emotional journey. A journey that changed our lives. A journey that continues today. Many of our friends and family have been with us on this journey. Yet, many others don’t know what happened to Landon and why his life is so amazing. This morning I am going to repost the first blog entry made just after Landon’s birth, in 2009. This is not an attempt to draw you back into that emotional time. It is an effort to show what God has done in Landon’s life and what a miracle Landon’s life is. This evening I will post pictures from Landon’s birthday party. Here goes:

Thursday, April 23, 2009

I thought I should update everyone on the situation with our new grandson, Landon Allen Joines. Jeremiah's son.

Landon was born early Monday morning, April 20th, 2009. At first everything looked fine. Within a couple hours his abdomen began to swell. A decision was made to send him to Brenner's Children hospital in Winston. The initial diagnosis, in Winston, was that he was bleeding from his liver possibly due to an injury at birth. Several test were done and no blood was found in the abdomen. Tuesday morning they began to suspect the colon. An upper GI was performed and a blockage was detected. They took him to surgery and discovered that his small intestine had twisted and the blood supply was cut off to the intestine. We were told that they would leave the intestine intact and look at it again Wednesday to determine if any blood supply was returning. We were also told that he probably would not survive. On Wednesday they took another look and it was not good. We were told that we should let him go. In the meantime were contacted by a family that has gone through the same situation. Their son received a colon (small intestine) transplant at Georgetown University and is now six years old. We have been in contact with doctors in Boston that have urged us to pursue a transplant. We are also making contact with the doctors at Georgetown. We have instructed the surgeons here to do the surgery today that will prepare him to survive until a transplant can be done. We are expecting the surgery to begin at any moment. After that we will be watching for any infections or complications. The next week will be critical. We have been told that he has a 50/50 chance of surviving this surgery