Tuesday, June 16, 2009

We Got The Email & Call Today!

Yes, finally we got an email from the Medical Director of Medicaid. He verified that Landon has now been approved for treatment at Boston. This email came some time after lunch today. Boston contacted us to let us know that they where working out the details with medicaid , but everything is a go. They are now making sure there will be a bed for him at Boston. They are predicting that we may be leaving by Thursday. This is a huge sigh of relief and could not have came any sooner. We are very blessed to have such wonderful and determined parents. Eldon has almost put his life on hold just to get this accomplished. But some how both him and Kathy have managed to keep their furniture shop operating, the dogs that they sell, feed and taken care of, the garden and greenhouse, watered and tended to. On top of all of that Eldon has gone off with the Cub Scouts to camp this week. He has Gavin and Ezekiel with him at camp until Wednesday. After he had wrote this morning he left to go back down to camp before lunch. When he found out the good news he was arriving back at camp. So that's why I'm updating the blog again today.
Landon is having a great day today. He is cooing and smiling and just being adorable! Landon's home health nurse Anne Beasley came today to check up on him and was very happy to here the good news. She is very impressed with Landon and knows that everyone in Boston will love him. Shelly and I really like Anne and appreciate everything she has done for Landon.
There are so many people that need to be thanked for all of there help and support. We want them all to know just how much they have touched our lives. We are so blessed to have such wonderful people in our lives. Shelly's best friend Angie Coffey has been a tremendous help with everything and Shelly really needed a friend like her through all that we have been through. Landon is the joy in so many peoples lives and has taught us all to appreciate each moment we have.
Landon is such a joy. It is absolutely amazing to watch him grow. To us all of the little things mean so much. It is a lot of work taking care of him but is is so worth it. Between all of the medications and line changes and dirty diapers we don't have a lot of time for anything else. Our other two children are being very forgiving. They enjoy Landon just as much as we do. Landon has already grown out of some of his clothes and some clothing is not convenient for his G-tube or his Central Line but that just means we get to go shopping for him which is fun for us. While we were visiting Dr.Petty we had three different people say "Oh what a cute little girl!" so I think we will stick to wearing blue from now on. Even though Landon is beautiful he is still a little man.

3 comments:

RivermasterNC said...

Again, what a difference a day makes. I hope and pray Landon responds well to the treatment offered in Boston. This is great news! Boston is steeped in US History. I hope you get to spend a little time seeing it and touring with Ezekiel.
http://www.bostoncitylinks.com/boston_attractions.html

-Scott

LISTEN, my children, and you shall hear
Of the midnight ride of Paul Revere, ...

Olivia said...

Hello,
My name is Dana and I was one of the nurses who took care of Landon at Iredell in the NICU and was the nurse who transfered him to Baptist. He and your family have been on my mind and in my prayers since that time. I cannot tell you how much it thrills my heart to hear that he is doing so much better than any of us had anticipated when I cared for him. I know that this has been a tough time for you guys and if ther eis anything that I can do for him or your family please let me know. I am praying for you guys continuously as you travel to boston and I pray that all goes better than expected. Take care and God Bless you and your little one. Thanks for the updates.

amanda09 said...

shelly and jeremiah i am here for you guys if you need anything call me whatever i can do to help i will he is in our prayers and i have churches praying for him too im glad you all finally got to boston he is a babydoll he is getting so big please keep us posted and if you need anything or help call me or write me back # 828 310 2591 ily all and kiss him for us love always amanda and family!