We finally managed to have the conference call with the doctor from Boston Children's hospital. This doctor is the transplant surgeon. Jeremiah was able to describe to the doctor everything that has happened and the procedures and medications that are being used. The doctor agreed with what is being done and was able to give some suggestions to pass along to the doctors here. He agrees with what has been suggested here, that we do our best to preserve the liver and put off the transplant as long as possible.
Here is the really good news. Landon has already had one abnormal bilirubin test. The doctor stated that if Landon has two consecutive abnormal bilirubin test he will accept him as a patient and we will fly Landon to Boston. He will be admitted to Boston Children's Hospital and they will get him started on the omegaven. After getting on the omegaven they can send him home with the omegaven and it can be administered here in North Carolina. The doctor was very optimistic. This is fantastic. Not only can we get him on the omegaven, if needed, but we can also get our foot in the door of one of the best children's transplant hospitals with a program for children with conditions like Landon's.
EJ
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3 comments:
Everything sounds so promising, my thoughts are with Landon and his very supportive family
Paul
This reminds us to continue to look for the good in everything! Two consecutive blog posts addressing the same set of lab results end with my feeling very differently about what the results mean for Landon. Prayers continue!
-Scott
I hate I had to send Larry to check on you guys. L wanted to see him so bad. He looks so much like Jeremiah! Our preacher has put your family on our prayer list at church and don't forget to call if you need anything. You know we are just a hop skip and jump from you guys. So let us know if you need anything, no matter how big or small.I hope he gets to come home real soon... Tammy and Larry
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