These are GOOD TIMES!

Kathy just got back from spending the weekend with Jeremiah, Shelly, Ezekiel, and Landon. This is what she has to report:

Landon is pure joy. He is awake, alert, playing, smiling, and cooing. He is very seldom fussy. Landon had several visitors this weekend including another visit from his great grandmother Estes.

There were a couple alarms this weekend. One in the middle of the night. It seems that the lipids are clogging up one of the lines. Jeremiah has learned how to unblock the line and will be speaking with the nurses about it this week.

Shelly was working this weekend. Taking care of Landon has become Jeremiah's full time job. For those that don't know Jeremiah has a serious back problem. We were making arrangements for Jeremiah to have back surgery, before Landon was born. That has all been placed on hold, for now, and Jeremiah is living with a considerable amount of pain. Hopefully Kathy being there this weekend has helped Jeremiah get a little more rest.

This weekend I made contact with a man, Michael Stephany, whose grandson, Aidyn, was born in Phoenix, Arizona a week before Landon was born. Shortly after birth his grandson developed necrotizing enterocolitis which resulted in him losing 95% of his small intestine and being placed on TPN. His family has already made the decision to take Aidyn to Boston and get him started on omegaven. They were leaving today. As it turns out there are some problems finding accommodations in Boston. The Ronald McDonald house, in Boston, prefers to accept only cancer patients. They will let other families stay there, if they have room, but will ask you to leave if a cancer family shows up. There is another house, the Devon Nicole House. They only have thirteen rooms and we have been told that the accommodations for omegaven families are not great. We are being told to expect to be in Boston for five to nine weeks. The children are not in the hospital the entire time but must remain close to the hospital for frequent test. So the accommodations must be clean and roomy enough to live in for several weeks. We have also been told that there are several families in the Boston area that have helped families that come to get their children started on Omegaven. The social workers in Boston should be able to help us. Michael has given us the contact information for his son and they have agreed to keep us informed as to what they find. I have told Michael that we would be saying a prayer for his grandson, Aidyn Stephany, who is on his way to Boston. So please keep Aidyn in your prayers.