Landon Going Home?

It is possible that, if everything goes right, Landon will be coming home this evening.

Baptist Hospital has located a nursing service out of Hickory that will take him as a patient. They had a difficult time finding a service that would take him or that is qualified to take him. They have located the equipment needed and Jeremiah and Shelly have been learning how to use it for the last couple of days. Jeremiah and Shelly have both had a "crash course" in nursing and caring for Landon. They are confident that they can care for him at home. They have been given direct contact numbers for the surgeons, doctors, and nurses at Baptist. If anything happens they are to make contact with them and take Landon directly back to Baptist.

This is a happy time and a scary time. We are so glad to get Landon home where we can spend more time with him. We want every possible moment with Landon. That's one reason that we chose not to let him die. We can't have that if he is in the hospital. Yet, we are taking a very sick little boy out of an ICU where they monitor his every breath and heartbeat. We know what some of they complications can be and will be watching every moment.

We have another conference call set up today with Dr. Jaksic from the Boston Children's Hospital. He is the transplant surgeon. We have a lot of questions for him and he seems to be very interested in Landon's case. I have still been spending many hours each day on the computer doing research and corresponding with other families of children with short bowel syndrome. I am convinced of two things. We must get Landon on Omegaven as soon as possible and we must get him into a transplant program as soon as possible.

EJ