Earlier I stated that everything had to go just right before Landon could come home today. Well it hasn't. Landon is not gaining any weight. If anything he is losing weight. They reduced the lipids in the TPN, from the start, in an attempt to keep from doing damage to his liver. The indicator that there could be liver problems developing is the bilirubin level. Dr. Puder's research indicates that if a child's bilirubin is over 3 and remains that way for three months there is a 78% mortality rate. The test from Monday show that Landon's is already over 3 and he is only two weeks old. We are now going to start shouting from the roof tops to get him on omegaven.
We are hoping that the conference call with the doctor in Boston will begin soon.
EJ
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