Yesterday evening I finally located a support group for people and families with conditions similar to Landon's. After signing on, I have received numerous emails from families giving us encouragement and telling us their stories. I am going to post links to some of their sites here. The more we can read about what they have been through the better prepared we will be for what lies ahead for Landon.
Kathy and I are going back to the hospital today. I will post an update on Landon's progress, this afternoon or evening. Ezekiel went to Winston to stay with Jeremiah and Shelly at the Ronald McDonald House this weekend. They will have to take him home this evening.
I am planning to start a web page for Landon soon. From there I can post stories and pictures about Landon as well as more links to web sites with information about other children and organizations dealing with Landon's condition.
Here are some links:
http://simuljustisetpecatur.blogspot.com/
http://www.schnazberry.blogspot.com
http://www.norathomas.com/
http://adrianalexander.blogspot.com/
http://grey.colorado.edu/shortgut/index.php/Omegaven
There are dozens more. I will get them on the web site.
Jeremiah is having trouble with his computer and hasn't been able to post any updates. We hope to get it fixed very soon.
EJ
1 comment:
Eldon:
Google has a tool for setting up websites as well. I have not used it, but saw it used by all the AHS seniors this year for their senior projects. I believe you can easily create pages everyone can see as well as pages you limit who sees. Home address is: http://sites.google.com There is probably some content related advertising as a "free" hosting service.
Less user friendly, is the "free" personal web space you get with your subscription to Skybest. I use ours:
http://web.skybest.com/~ontheriver/
Setting this up will likely require getting access and directory information from Skybest, if you are not already using yours.
-Scott
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