Shelly and I want to thank everyone!

Shelly and I can finally post updates now. Our laptop is down but, Rogers PC works fine. Just wanted to thank everyone for your support and concerns. Things have been tough here lately keeping up with our daily activities, chores, and other 2 boy's homework. Landons care is a full time job by its self but, Shelly and I are working well together to get everything done. But without every ones support it would be very difficult! The Home Health Care Nurse Anne has went out of her way to make sure Landon is getting a fair chance. She was able to figure things out with his Lab work to get it faxed to us before anyone else. We have been mislead every since we have left the Hospital. It has been very difficult for us to get any lab results and even get in touch with the doctors or nurse in charge of Landon. With us being tied up with Landon, Ezekiel, and Roger we have had no time to do the necessary research. Thanks to Anne for getting the labs to us and Eldon for contacting Dr. Puder. Landon now has a good chance to go to Boston and try Omegaven to hopefully reverse some of the damage already done. I have been talking with Danielle from Boston and have found that Landons labs are far from being the same. His last 2 labs have not had his direct Billi tested. His Surgical doctor has said things are fine and normal. This is entirely not the case, things have turned. Danielle was very honest about things on his labs. The labs showed that definite damage to his liver is occurring. His direct bili , AST(SGOT) and ALT(SGPT) is all way to high . The AST and ALT is elevated because damage is being done to his liver. Boston looks at many different test to determine this but , Danielle pointed out that if the Direct Bili was up along with his AST and ALT test ,then definite damage from his TPN and Lipids were occurring. We will try our best to update often. Eldon has done a very good job so far and his information on Landon is very up to date. Thanks again to everyone!! JJ